Hospice Care « End of Life Issues

Articles & Publications and Organizations & Services
re: Hospice Care

Articles & Publications About Hospice Care

• End-of-Life Care for Patients With Advanced Dementia (New York Times – 11/2/10)
  It’s hard for physicians to determine with much precision how long anyone with a terminal disease can expect to live, but it’s particularly challenging when the disease is advanced dementia.  “People with dementia get sicker inch by inch… trying to say, ‘Now, she’s ready for hospice’ is much harder.”
• Have You Had The Talk?
  Not the one about drugs, or about sex. This campaign from Hospice of Michigan urges all adults to consider what kind of care and plans they want followed if they ever need to rely on someone else for their medical care and decision making. The best time to plan and prepare is when there is no emergency, no crisis, no scrambling. The Talk is a gift to anyone who needs to know what you want when you can no longer speak for yourself.
• How to Choose Hospice Care (Caring.com)
  Determining the appropriate hospice care you or a loved one requires at the end-of-life may seem like a daunting task to take on during an already difficult time.
• How is Hospice Care Paid For?  (American Hospice Foundation) FAQs
• Medicare Hospice Benefits (Centers for Medicare & Medicaid Services)
  Official government booklet for Medicare hospice benefits.
• Medicare Hospice Benefits (Centers for Medicare & Medicaid Services)
  Brochure: Gettings Started – Care and Support for People Who are Terminally Ill   
• Safeguards for Medicare Patients in Hospice Care (CMS – Feb 2020)
  Hospice is an increasingly important benefit for the Medicare population. Medicare patients who elect hospice care are an especially vulnerable population. They have the right to be free from abuse, neglect, mistreatment, and misappropriation of patient property. When hospices cause harm or fail to prevent or mitigate harm caused by others, patients are deprived of these basic rights.

Organizations & Services About Hospice Care

• Angela Hospice (Livonia, MI)
  We are here to help and empower you to make the best decisions for you and your family.
• Arbor Hospice
  Mission is to give comfort, assurance and care to families and patients who have life limiting illnesses, and to educate and nurture others in this care.
• Caring Connections
  A program of the National Hospice and Palliative Care Organization (NHPCO), is a national consumer and community engagement initiative to improve care at the end of life.
• End of Life Info (Hospice Foundation of America)
• Hospice Foundation of America
  Dedicated to preserving and expanding access to Hospice care in America. We connect advocates with one another and provide them with the tools they need to fight for the Hospice cause at home, in Washington, and online.
• Hospice of Michigan
  Provides comprehensive, compassionate comfort care to people with acute chronic illness and support to their loved ones.
• International Association for Hospice and Palliative Care
  Our Mission is to improve the quality of life of adults and children with life-threatening conditions and their families.
• National Hospice Foundation
  Committed to compassionate care at the end of life.